Neuro note #3
Facing Death Full of Life | TEDxBerkshires Danielle Valenti gives a heart wrenching discussion on the impact that Huntington’s disease has on the children and family of those affected. We often examine the lives of those who currently suffer with the disease, but not enough are we listening to the other half of the story. Danielle discovered that her mother had Huntington’s disease at the age of 25, after years of secrecy. She had to take on the impossible task of being her mother’s caregiver during the last years of her life. It was eventually too much to bare and she had no choice but to place her in a Huntington’s end of life home and had to watch as her mother chose to end her life by refusing to eat. This journey was extremely painful for Danielle, but it was unfortunately just getting started. She later discovered that an affair her grandmother had would be the reason that she would become the next generation of Huntington’s. I chose this story because I wa...